Life as a Caregiver for an Epilepsy Patient

Epilepsy has a great effect on the lives of their health professionals and individuals. In adolescence, epilepsy has an incidence of 1.5% to 2%. Its impact could be distinguished with regards to social consequences, such as isolation, bias, and unemployment, or with regards to psychological influences, as seen in private relationship difficulties, negative self-image, and low self-esteem.

The psychosocial issues experienced by people with epilepsy cause higher loss of wellbeing than the seizures themselves. Aside from the impairment in patient’s lifetimes, the impact of epilepsy could be seen in households, resulting in burden and diminished caregiver QOL. The burden on care providers of persons with epilepsy was studied mainly in kids.

Nevertheless, epilepsy that begins in adolescence may also have a large impact on caregiver or family lives. Two syndromes have onset in adolescence. Among them, temporal lobe epilepsy because of mesial temporal sclerosis, is the most typical kind of human epilepsy.

It may take the kind of an advanced syndrome comprised of a first precipitating insult, chiefly febrile seizures happening early in life, followed by a seizure-free period and after those spontaneous recurrent seizures in adolescence.

Drug treatment often fails later in life. It’s a syndrome of particular clinical interest as it contains the vast majority of patients with medically intractable epilepsy and is accompanied by high levels of psychiatric comorbidity and psychosocial problems, which often result in poorer QOL.

In the other extreme are idiopathic generalized epilepsies together with variable phenotypes the most typical being juvenile myoclonic epilepsy which contribute to 5% to 11% of all epilepsies and are portrayed by myoclonic jerks, generalized tonic-clonic seizures, and absence seizures with normal cognition.

The purpose of this study was to assess and compare QOL and burden in care providers of adolescents and adults together with either TLE related to mesial temporal sclerosis or JME. We sought to determine if care providers of individuals together with these specific epileptic syndromes suffered significant burden and diminished QOL.

This study included 100 consenting care providers, 50 of individuals with TLE and 50 of individuals with JME who received therapy in the Epilepsy Section of the San Paolo Hospital, Federal University of Sao Paulo, Sao Paulo, Brazil. The ethics committee of the institution accepted this survey.

For this research, the caregiver was defined as the nearest family member or friend who lived together with the patient or as a person who spent a higher part of his or her life together with the patient, witnessed seizures, and has activated a part in the patient care and treatment.

Starting A Non-Medical In-Home Caregiver Service

With individuals in the U.S. living longer than ever, unlike that in the past, the need for non-medical home care has increased drastically. Learning how to become a non-medical homecare company proprietor may be a very profitable venture. Non-medical homecare providers provide basic services such as feeding, personal hygiene, and even some light housework.

In contrast, medical home care is essential for people who need medication, injections or treatment administered by a trained medical practitioner. By beginning a non-medical homecare organization, you will not need to employ nurses or other medical experts, but you can only employ general non-medical caregivers for your company. Prior to starting this kind of organization, really think and plan out the steps involved in the process.

Make sure that you have a Business Plan – From the business program, outline your mission in addition to the structure which you plan on using for your company. In several cases, you can also be able to become involved or join in some kind of a membership network which will provide you some help and guidance on the ways and they know how to begin a non-medical home care company.

In your business program or plan, include your financial projections with sensible estimates of income and expenses. As an example, you might like to establish a policy which stipulates patients can only be transferred if two workers are present and harnesses are utilized. You may want to set rules against specific care processes on account of the accountability they create. When working with individuals who need home care, you’re taking on a considerable amount of liability. For that reason, ensure that you have a large liability insurance contract and a business entity set up.

When hiring your staff, remember that in the homecare industry, your care providers and their skills are the only products that you have to offer your clients. For this reason, you must develop a recruitment program which involves seeking out top quality and dedicated caregivers who enjoy helping others. You’ll have to provide a competitive compensation and benefits package too. Retaining your care providers is also significant, so introducing an incentive program can help you in keeping your good workers over the long term.

When buying equipment for your new business, it will be great if you have the funds to buy the essentials such as business vehicles, transportation equipment, cleaning supplies, laptops, clipboards and office equipment. Having the proper equipment for your company will assist you to look after your patients better and it’ll also help keep your workers happy. This ultimately will help you retain your talented caregivers.

Later on, we will write about how to market your new non-medical home care business. We will discuss how to put your advertising in areas that may be seen by individuals who might need home care.
We hope that you enjoy this article. If you have any questions, please leave them in our comment section below and we will get back to you.

Helping Your Loved One Cope with Advanced Cancer


Support for Caregivers

A book from the National Cancer Institute

Your loved one may be struggling with advanced cancer or with a cancer recurrence. Doctors may be saying that the cancer isn’t responding to treatment. You may have been told that long-term remission isn’t likely. Or your loved one may have decided to discontinue treatment and live out his or her days to the fullest. This may be a time when new decisions need to be made. Shifts in care may be needed or may already be taking place. The burden of making these decisions together may seem much heavier than it used to be. These choices often come with many emotions, such as sadness, anger, and the fear of the unknown. They may also come with questions about how much longer your loved one will live. Thinking or talking about these issues may feel like you’re giving up. But you aren’t. It doesn’t mean giving up hope. People usually cope better when they have different options. Having information about how to deal with tough situations will help. Your loved one still deserves good medical care and support from the healthcare team even if the treatment changes.

Is This Booklet for Me?

This booklet is for you if your loved one has been told that he or she has advanced cancer that is no longer responding to treatment. It explores many of the questions and crossroads you may be facing now. Until now, you have probably gone through cancer treatment with your loved one hoping for a remission or recovery. If your healthcare team is telling you that this may not be possible, you may be facing new choices to make about care and future steps.

Making these transitions in care can be hard. You’ll need to focus on the things you can control and what you can do to make this time for your loved one special. You’ll want to help the patient live life to the fullest. Many caregivers say that this time gave their life special meaning and a sense of what’s important. There are other booklets available that talk about how to give care to a loved one. But the purpose of this booklet is to focus on you and your needs.

Who Is a Caregiver?

If you are helping someone you love during cancer care, you are a “caregiver.” You may not think of yourself as a caregiver. You may look at what you’re doing as something natural—taking care of someone you love. There are different types of caregivers. Some are family members. Others are friends. Every situation is different. So there are different ways to give care. There isn’t one way that works best. Caregiving can mean helping with day-to-day activities such as doctor visits or preparing food. But it can also happen long-distance when you are coordinating care and services by phone or email.

Caregiving can also mean giving emotional and spiritual support. You may be helping your loved one cope and work through the many feelings that come up at this time. Talking, listening, and just being there are some of the most important things you can do. During this time, the natural response of most caregivers is to put their own feelings and needs aside. They try to focus on the person with cancer and the many tasks of caregiving.

This may be fine for a little while. But it can be hard to keep up for a long time. And it’s not good for your health. If you don’t take care of yourself, you won’t be able to take care of others. It’s important for everyone that you take care of you.

In Order to get or read the complete material, go to this link – https://www.cancer.gov/publications/patient-education/When-Someone-You-Love-Has-Advanced-Cancer.pdf

Who We Are

Dignity BayAra HomeCare Staffing is a non-medical in-home care provider that assists individuals and families. We are dedicated to helping our clients lead dignified, independent lifestyles in the comfort and safety of their own homes by carefully assessing and fully understanding their needs and selectively placing trained personnel to meet these needs.

What Services We Provide

Home Services:
• Routine housework including general cleaning, vacuuming, dusting, washing floors, laundry, ironing, changing beds, defrosting refrigerators/freezers, cleaning ovens/stoves and china cabinets.
• Heavier cleaning such as spring-cleaning, light fixtures, and washing walls and windows.
• Planning, cooking, and serving meals.
• Baking for holidays and special occasions.
• Monitoring and motivating regular diet plans.
• Transporting clients to social activities and appointments.
• Running errands and shopping for clients or transporting clients to carry out these activities.
• Assisting with mail, correspondence, and payment of bills.
• Providing respite and palliative care.
• Serving as companions and participating in friendly socialization activities.
• Assisting with entertainment preparations, hosting, serving and/or cleanup.
• Packing household goods when changing residences.
• Caring for pets including feeding, exercising, cleaning litter boxes, cleaning birdcages, taking to grooming appointments or to the Vet.
• Caring for plants.
• Monitoring clients’ safety, comfort, and welfare by contacting them by phone or by making home visit(s).
• Checking interior conditions of homes while residents are away and ensuring the exteriors reflect an “at-home” appearance. Continue reading “Who We Are”

Frequently Asked Questions

At Dignity BayArea HomeCare Staffing, we encourage you to ask us questions! Here are some frequently asked questions with the answers provided for your convenience. If you have a question that is not listed, please ask us directly. We look forward to hearing from you and we pledge to do our best to answer all your questions.

  1. Q. Is the cost of services covered by my health plan?
  2. A. Depending on your coverage and the services required, some of the costs may be covered by your health plan. You will have to ask your health plan provider for details.

 

  1. Q. Can I pick the services I want?
  2. A. Yes, you certainly can pick and choose the services that you want. You are the customer and you tell us what to do!

 

  1. Q. Are your employees insured and bonded?
  2. A. Yes, all our employees are screened so that they can be bonded and insured.

 

  1. Q. Do I get to pick the person looking after me?
  2. A. Yes, if you do not like the match we made you can help us in finding a better employee match.

 

  1. Q. Are all your employees nurses?
  2. A. Some are nurses, some are designated health professionals and some are trained caregivers. We match the employee’s training to best fit your needs.

 

  1. Q. Are your employees trained?
  2. A. Yes, most of our employees have specific training in a health discipline or have been trained internally through the Dignity BayArea HomeCare Staffing training program. Our employees are encouraged to continue their education and training throughout their employment with us.

 

  1. Q. What happens if my caregiver gets sick?
  2. A. You have a choice of canceling the appointment or allowing us to send a replacement caregiver.

 

  1. Q. Is Dignity BayArea HomeCare Staffing service only available in the home?
  2. A. No, we can provide our services to you whether you live at home or a senior’s complex or healthcare facility.

As you know, there are more questions that families might want to ask than what we post in here, so we encourage you to ask away. Not only that will clear up some of your concerns, but they will also help us to improve our services even more.

For more information, please fill out the contact form on our Contact Us page and we will get back to you as soon as possible. You can also visit and like us on our Facebook Page.

 

Are You Ready for Your “Care-Years?”

 Our “care-years” is a time in our lives when we need a combination of support services so we can live as independently as possible. Are you ready?

 

  1. I know that my retirement years consist of 2 parts: the well-deserved, relaxing, independent years and the changing health, increased dependency care years…and I have an understanding of the needs of ‘both’ stages…(yes / no)
  2. I have a good grasp of my financial, legal, and insurance affairs. I feel confident that all my necessary documents are up-to-date and in order…(yes / no)
  3. I have made my end-of-life wishes known (e.g. written a will and discussed services with a family member)…(yes / no)
  4. I feel confident that I have a good retirement plan in place because it takes into consideration the financial impact of my changing health needs…(yes / no)
  5. I know at least one government agency in my community with the responsibility for seniors’ health needs and I am aware of one of the programs offered through that department…(yes / no)
  6. I know what to look for and how to elder-safe my home (inside and out) in order to reduce potential accidents…(yes / no)
  7. I understand the medications I am taking and I have asked about many of the possible side effects related to those medications and the signs to watch for……(yes / no)
  8. I know what to do during health emergencies and I am familiar with some of our local hospital’s special resources for seniors…(yes / no)
  9. I am aware of some of the subtle signs of dementia to watch for in my family members (e.g. the need for routines)…(yes / no)
  10. I am aware of the various care-programs in my community (e.g. at-home services, rehabilitation services, nursing services, adult daycare options, assisted living complexes) and know how to request these…(yes / no)
  11. I understand many of the costs associated with the care-years (e.g. at-home services, therapy costs, medications, cleaning services, special equipment…) and realize that there is now a special insurance policy available to help me cover certain care costs when needed…(yes / no)
  12. I am confident that there will be ‘few surprises’ for my family to contend with during my senior years because my house is in order…(yes / no)

 

For more information on our in-home living assistance services please fill out the contact form on our Contact Us page.

Home Services Summary

Dignity BayArea HomeCare Staffing is the answer to independence for seniors. Whether the services are for you or a loved one. Dignity BayArea HomeCare Staffing can offer respite to family caregivers and help extend and enhance living at home as a safe and comfortable alternative to institutional living without the stress of interrupted routines and changes in daily routines.Elderly lady conversing with her caregiver.

While Dignity BayArea HomeCare Staffing cannot replace the love and support of an elderly person’s family, our caregivers provide helpful and necessary services needed to brighten the day, lighten the workload and ensure peace of mind. Examples of our home services include:

  • Companionship & Conversation
  • Medication & Appointment Reminders
  • Meal Planning, Preparation & Clean-Up
  • Light Housekeeping, Laundry & Ironing
  • Escort to Appointments, Lunch or Dinner
  • Provide a Stable Bathing Environment
  • Oversee Home Deliveries & Maintenance
  • Clothing Selection & Dressing Assistance
  • Assist with Pet Care
  • Reading Magazines, Papers & Books
  • Assist with Walking
  • Letter Writing & Correspondence
  • Monitor Diet, Eating & Food Expirations
  • Play Mind Stimulating Games
  • Care of House Plants
  • Discuss Current & Historical Events
  • Participate in Crafts & Games
  • Record & Arrange Recipes
  • Prepare Grocery List
  • Rent, Play & Discuss Movies
  • Maintain Client Scrapbook
  • Drop Off / Pick Up Dry Cleaning
  • Airport Assistance
  • Organize Mail, Bills & Letters
  • Assist with Gardening
  • Plan Visits, Outings, & Trips
  • Visit Neighbours & Friends
  • Maintain Client Calendar
  • Morning / Bedtime Care
  • Attend Religious Services
  • Record Family History
  • Take Out Garbage
  • Arrange Appointments
  • Change Linens & Make Beds
  • Pick Up Prescriptions
  • Organize & Clean Closets
  • Grocery & General Shopping
  • Answer the Door & Telephone
  • Reminisce About the Past
  • Prepare Future Meals
  • Attend Plays & Club Meetings
  • And Much, Much More…

Contact us to learn more about our services, or to arrange for a free consultation.